Berylliosis vs Sarcoidosis Misdiagnosis Featured Image

hyoid-lie Sometimes I wonder … Is this live? Or is this Memorex? Am I awake? Or have I dreamed nearly fifty-nine years of my so called life? Yesterday, I had any one of those moments. Berylliosis vs Sarcoidosis = Misdiagnosis? The hour + drive up to Rutgers University Medical in Newark, NJ was pretty uneventful. A bit of construction still happening on the old Garden State Parkway — but nothing major. I made it there with time to spare for my 10:45 AM appointment with…Continue Reading “Berylliosis vs Sarcoidosis = Misdiagnosis?”

It took a rather arduous journey to arrive here. From beginning to end, when foot met pedal, slip sliding through distant New Jersey neighborhoods, to arrive at my final destination — at least for that day — I was hoping for the best. The town of Montclair, New Jersey, was not all that different than the suburban town of Linden I grew up in. It may have seemed a bit more upper class, but even as a child that’s kind of how we all saw…Continue Reading “Sinonasal Sarcoidosis: Getting My Nose Out Of Joint”

It’s been over ten years since the beginning. Presenting as a mystery, wrappped in an enigma, wrapped in a disease that has no end; but it did have a beginning. Back in Seattle, the summer of 2002 at Bally’s Fitness, I noticed my breathing becoming labored, but nothing I couldn’t power through. It was the start of something. Months and years passed. A host of symptoms came and went. It was still difficult to breathe on occasion, but nothing to set off alarms — yet….Continue Reading “Sarcoid @ Rutgers: Looking For Clues”

Another Boy Another Planet There are times I’d like to be transported to another time, another place, another planet. The time specifically? Any time where I never had to deal with the mysteries of my body. Where life was lived and not examined—by myself nor a doctor. These past several months have been a relentless drain on my health and my wellbeing—both physically and mentally. I’ve been dealing with lethargy, a fuzzy brain, and weight gain. Not to mention the emotional component of feeling out…Continue Reading “The Sarcoid Life: 1,25 dihydroxy-vitamin D or The Things We Learn Whether We Want To Or Not!”

Living The Sarcoid Life

I had a realization just the other day, while on the treadmill at the gym. It was seven years ago this month that I started “Livin’ La Vida Sarcoid”. Well … I should be a bit clearer. It was seven years ago this month I started back at the gym … the first time around. At that time I was lookin’ down the double barrel of my 45th birthday. A momentous occasion, maybe. But something inside of me, it could have been all the fat,…Continue Reading “Livin’ The Sarcoid Life”

So this is 60 And what have you done Another year older And a new one just begun And so this is 60 Right now I can’t run With the way things are going, will I reach 61 … (Sung to “So This Is Christmas”) Danger, Will Robinson! Danger! This may turn into a Category 5 rant. For the faint of heart you may need to just go here. I know the preceding sounds a bit melodramaculous, and the following may be a bit over…Continue Reading “This is 60?”

It started a few months ago; but I was not conscious of the fact. In the absence of heat, with the passing of seasons something sinister was occurring; slowly but surely. It may have been imperceptible at first, but as time passed it became more pronounced and identifiable — my mask was melting. Though I am not one to don one physically or metaphorically, this chemically produced mask hid something very personal from the general public — my depression. But as the last days of summer faded…Continue Reading “Medicated Goo: Eight Months In: The Melting Mask”

Poser! I’m not a poser by nature; using the British slang: “One who attempts to appear to others as something they are not, especially by their manner of dress; a charlatan.” So taking a photo — like the one you see — is not something I’m comfortable with. But to be able to see my “vegan gains” I need reference photos. As much as I work out now, and as much as my body is changing, I still sometimes think with my 275 pound “fat brain”. There…Continue Reading “Vegan Gains: The Journey Continues”

Chemically Altered Featured Image

Chemically Altered – Or How I Learned To Love The Pill On The Road It’s been a long hard road, with too many twists, turns and setbacks. But I hit that road and I hit it hard; visited many a medico along the way — with not much to show, and little comfort on those cold, gray, dreary stretches of that godforsaken New Jersey highway. Granted, I did find a few good eggs and traveling companions along the way: Dr Berman, and Dr Kalyouseff. Then again —…Continue Reading “Chemically Altered – Or How I Learned To Love The Pill”

Cataracts The Eyes Have It

I came to his office for an eye exam; and left with an uneasy feeling. Since having been diagnosed with Sarcoid, over 10 years ago, I’ve had to go for regular eye exams, along with regular lung exams. Usually pretty routine. But this eye exam was a tad different. When Dr Sergio Peneiras of Brighton Eye Care was done with his full exam, he started telling me my vision hadn’t changed since my last visit a year ago. I was flummoxed. It seemed to me, my vision had changed dramatically around…Continue Reading “Cataracts: The Eyes Have It”