Most times the perceived cure is worse than the disease.

Oh I certainly did my homework on Methotrexate. Plus we were monitoring my liver every few weeks. The biggest problem was the two-day-long headaches I was getting. And the blurring of my vision. Not very pleasant by any means.

But after my sleep study, the headaches may have been cause by my apnea. Honestly I’m sick of all of this shit! I’m literally sick & tired of being sick & tired.

I’ll be seeing my pulmonologist end of April. He’ll either put me on Methotexate again, or Colcochine (gout med), Hydroxychloroquine, or any number of other odd … you would think had nothing to do with Sacroid … kind of drugs. The only thing they have in common is slowing down immune system. That’s all they can do. Oh and throw prednisone at you when my lungs are being affected … like right now.

I asked my pulmonologist for a three month reprieve from all my drugs. Just to see what my body felt like without them. It’s now four months later … and I’m starting to notice shortness of breath when I’m walking or being mildly exerted.

It’s all a crap shoot. I never know when it’s coming or if it will subside. I really didn’t think this is what 52 would be like. But that’s life baby! These days though I don’t know that I even have control over the quality of that life.

Like Phil use to say … control … it’s all an illusion. =: o

Thanks Phil! :p:::::::::::::::::::::::::

Methotrexate is actually an anti-metabolite. I mean literally a stop-the-metabolism-from-working drug. I hope you don’t have to take that *ever* again! It can cause severe or even fatal liver damage, not to mention a host of other problems (I’ll bet you’ve looked it upâ??I hope you have!). On the other hand, you won’t have psoriasis (it’s used for really really bad cases).

OK, so I’m late with this comment, so sue me. But I hope you’re doing better!!

:* :* –A.

I wanna see more pics!

So how was the birthday week?

You look like a real-life outtake from OK Computer in that shot.

It should be awesome… only it’s fucked cos I didn’t see Dr. Tchock listed as one of your
docs.

Hoover

At some point I want to figure out your logic behind the structure of your blog.

Alex´s last blog post..Trading a gem

Yes very post-modern, post-apocalyptic, post-middle-aged Six Million Dollar Man exploded having eaten one too many chalupas.

Yeah … it sucks! Big time. But to say it’s active is another one of those nebulous statements. Yes I know my lung capacity is down … but my body will compensate by creating more red blood cells to carry more oxygen. That’s indicated by the hemoglobin count being higher than normal.

Yes I have these lesions in the bones of my hands, but there was a period of 6 months there was no pain from using my hands. That’s when I started back at the gym. I was thrilled to death! But a month in, I went to pick up a dumbbell and I felt ‘the twinge’ in my hand. I knew that feeling from before. And sure enough, within a week … I was back to the point where I couldn’t hold things in my hands, or trouble grasping or putting pressure on my fingers. It’s so very frustrating.

I wanted to take a ceramics class at a local college, to see if my hands could take it … but I think I’d be better off just buying a bag of clay and playing with it on my kitchen table. As much as my blog and scanning and posting my old photos, and regaling folks with those stories … what I can remember … it’s not real, or really enough.

I am an artisan. I need tactile stimuli and response, with a three dimensional object as a result of my own hands.

Anywho … glad you stopped by. Glad you took the time to read. Now go look at more Clash photos dude!

Sucks to hear that the sarcoid is active again. How’s your diet of late? Able to eat/drink? How active can you be when you’re feeling this bad?

Alex´s last blog post..Pitchers are up on Etsy